Fifteen months old Kazakhstan girl Ayana diagnosed with a rare genetic disease, Spinal Muscular Atrophy (SMA Type 2) quoted $2.1 million for treatment now counting on the prayers, help, and sympathy of the general public to live again. Family and Friends in sincere Plea as all hopes lie on your support.
All turned around for Ayana Akshal’s family, a 15 months old Kazakhstan kid as she was diagnosed with Spinal Muscular Atrophy (SMA Type 2) – a sporadic genetic disease that has robbed her of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to stand, walk, sit, and potentially eat, or breathe independently. In order to save and maintain her vital body functions, Ayana is in desperate need of undergoing a one-time vein infusion gene therapy at the cost of $2.1 million dollars. The therapy, to be sold as Zolgensma, alters the underlying genetic cause of spinal muscular atrophy and may permanently stop the disease.
No such treatments are available in her country yet. But with the success of anticipations, Ayana would receive treatments in the United States. After the age of 2, no known medications are proven to help relieve or prevent the potentially fatal symptoms that come with the disease. Ayana currently has less than seven months to receive the treatment. All hope is not lost with you, Ayana's family appeals through this medium to charity organizations, foundations, compassionate bodies, and everyone with the right clinical advice and capacity to help save Ayana today.
Your donations would provide direct support and assistance to foster Ayana’s treatment and survival regardless of its size.
Make your Donations through the Gofundme platform and encourage your friends and family to support: https://www.gofundme.com/f/save-aiana
You and only you are the very assistance she requires. THANK YOU!
Media Contact
Contact Person: Leila Quinn
Email:Send Email
Phone: 310-307-6101
City: Los Angeles
Country: United States
Website: https://www.gofundme.com/f/save-aiana
